Lots of things have been happening recently with November being CRPS awareness month. I have been in a few local papers raising awareness of CRPS (see links on the right). On November 7th (CRPS day) I got to meet some senior councillors at Islington Town Hall, teach them all about CRPS and have an orange themed photo. It was great to raise awareness of CRPS in the local community and also to have them support my CRPS awareness work.
On November 12th I went to a soup lunch held at the Halfway House Kineton (Gloucestershire), raising money for CRPS UK. It was a great event with many members of the village supporting the event. Tania (Landlady) had made three different soups with £2 from each soup going to CRPS UK, I can assure you that they were all delicious (I had one not all of them!). It was lovely to have one of the co-founders of CRPS UK and also two members of the support group there too. It was a lovely afternoon and we raised £260 for CRPS UK in the process.
For the last month or so I have been raising money for CRPS UK and my 5Km wheelchair challenge, thank you to everyone who has donated so far I have raised over £1000, which be a massive help for the charity. If you haven't donated but want to click here.
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As it is CRPS awareness month, here are ten facts about CRPS:
- CRPS is the most painful condition known to medicine.
- Many cases of CRPS go misdiagnosed.
- A study claimed that 1 in 3800 people in the UK develop CRPS.
- The cause of CRPS is unknown although it is usually triggered by an injury or surgery.
- There can be complications of CRPS such as ulceration which can lead to further complications and infection.
- There is no cure for CRPS
- There are no specific medications for CRPS.
- Treatments include spinal blocks/epidurals, spinal cord stimulators, ketamine/lidocaine infusions.
- Most doctors have not heard of CRPS let alone know how to treat it.
- In the past CRPS was thought to be psychosomatic but research has proved this to be wrong.
